Hi Nezumi,
I’m happy to say that after a dreadful Christmas spent mostly in seclusion as we expected, good things are starting to happen. A n NHSE case review highlighted the fact that he shouldn’t have been placed there, there needed to be one person taking over the case instead of about three different teams who weren’t communicating with each other, T needs to have some input in the decision about where he goes.

The CCG have got their act together and have found a placement closer to us. It is a hospital that doesn’t do seclusion which is the most important thing. We have been able to visit and have shown T photos and videos. He will have opportunities to talk to staff and already feels included in the process.

It’s still 90 miles away but we are hoping he will be treated kindly while we can get on with the task of finding an ordinary home for T in the community.

When T leaves his current placement he is talking about letting people know what it was like. We will have to be very careful about how he does this but believe me it will be a very interesting story!

How is your son Nezumi? Are you still having to travel to see him?

Thanks for this. These are such useful downloadable pamphlets. They set out clearly what human rights are and the steps you can take if those rights have been interfered with. They will be useful at our son's next ctr.

Things are really tricky at the moment. We are waiting to find out if our supporter can resume contact. She has valuable work to do in terms of creating a service design and a therapeutic plan and above all else she is a friend to T. I'll keep you posted.

Hi Mark, I have an update for you. My son's blog has been taken down because the hospital weren't happy about it. They say our supporter who was helping him to write the blog has breached their trust. At the moment they have banned her from calling or visiting T. This has been devastating all round. We are still waiting to find out if this will be permanent.

Yes, I'm so sorry about this but there have been some issues and it has had to be taken down. We hope things will be resolved soon.

Hi Nezumi, so sorry to hear about your son. That is such a long way to visit! We wrote to Norman Lamb about our son's case and he was very sympathetic, responded quickly although there wasn't much he could do as we are not in his constituency. (Our own MP failed to even acknowledge the email!).
The ctr will be very important as it's an independent panel with very specific criteria. We found this very useful in creating an action plan, keeping things moving however slowly!

Yes Jules, there is a plan to get him back and we are lucky enough to have an independent supporter helping us with this. I really appreciate this forum and I'm sure I'll be using it a lot over the coming months!

He is going to be assessed by a local provider soon and we have very good support from an independent supporter who is putting together a service plan. This will all take time as it will have to be very carefully tailored to meet his needs but it's a start.

Thanks Isabelle, yes he has had a ctr and has another coming up soon when we hope many of the recommendations will have been auctioned.

Hi, we are in Gloucestershire and he has been moved to South Yorkshire.