Hello all,
Thought it was time for an update on my son's situation. Very little has changed. He is still 150 miles away in a medium secure forensic unit . Everyone is still in agreement that he shouldn't be there. He is still being secluded, hates it so much he throws himself to the ground so they use a slip sheet to carry him there or drag him down the corridor so he has carpet burns. He worries he will be secluded on Christmas Day, I'm pretty sure he will be.
At least our independent supporter can have contact with him again. She was banned from the hospital because she had helped him write a blog to tell people of his experiences. The hospital said he didn't have capacity to do this but after a 6 week wait, an independent capacity assessment proved that he did have capacity.
Our local CCG have been doing little to fill us with hope for the future, still 'exploring' other placements and having meetings.
So here we are, its December, T has been in seclusion for 2 days solid and the nurse won't tell me why.
Nothing has changed.

Are you having more luck with the LA now Xmas has been and gone? I found mine sort of stopped doing anything mid December.

If he has capacity are they going to let him write his blog? I’m sorry it doesn’t sound a very open/transparent place - and they just should be :(

Hi Nezumi,
I’m happy to say that after a dreadful Christmas spent mostly in seclusion as we expected, good things are starting to happen. A n NHSE case review highlighted the fact that he shouldn’t have been placed there, there needed to be one person taking over the case instead of about three different teams who weren’t communicating with each other, T needs to have some input in the decision about where he goes.

The CCG have got their act together and have found a placement closer to us. It is a hospital that doesn’t do seclusion which is the most important thing. We have been able to visit and have shown T photos and videos. He will have opportunities to talk to staff and already feels included in the process.

It’s still 90 miles away but we are hoping he will be treated kindly while we can get on with the task of finding an ordinary home for T in the community.

When T leaves his current placement he is talking about letting people know what it was like. We will have to be very careful about how he does this but believe me it will be a very interesting story!

How is your son Nezumi? Are you still having to travel to see him?