Hello Ruth. I'm so sorry to hear about what you and your son are facing and going through. Has your son had a Care and Treatment review? If not, I'd strongly suggest you ask for one as it will bring all the professionals involved in your son's care and treatment together in front of an independent reviewing panel. There is some info on this site about care and treatment reviews (CTRs) but please let me know if you'd like me to send you some links to some helpful info. Best wishes Isabelle